For quite a long time there were no volunteers to come to Cherven children's orphanage. But recently 2 sisters from Ireland came for a 4-week visit to the children.

There are a lot of impressions, but let's see what the girls say:

"With no previous experience of working with children with disabilities and qualified only in hugs and kisses we were extremely nervous about what was to come, but as always we took it in our stride and with big smiles on our faces we stepped into a place that we would soon come to love!

Unit 6, a palliative care unit where the children have severe mental and physical disabilities with some children fed through nasogastric tubes was the first unit we visited. Although the prognosis for most of the children is not good, a simple walk around the grounds, a trip to the multi-sensory room or balloons and bubbles can really brighten up their day and bring life back into the unit. The moment a child smiles at you or uncontrollably laughs when you tickle them with a feather gives you goose bumps. It really is the small things that make such a difference.

Another unit we worked in was Unit 5, made up of young children with mental and physical disabilities. Some can walk and some are confined to their wheelchairs. One particular boy Victor, has Downs syndrome and as a result, a heart defect. Just a couple of months ago, Pasha another boy with the same condition passed away as a result. Victor is the most intelligent little boy in Unit 5 and when you watch him the realisation that he is a ticking time bomb is extremely hard to swallow.  We spent our mornings bringing all the children on walks around the grounds and bringing groups to the multi-sensory room both of which they loved.

Unit 4, also known as the crazy walkers, are abled-bodied kids who have more severe mental disabilities. At the beginning we avoided this unit because the bad weather meant they were confined to their unit. However, once outside lots of the children enjoyed interacting. We spent time drawing with chalk, playing with balloons that kept bursting because of the heat, bubbles which wouldn’t work because they shook them and loud music for dancing. They loved it, we only wish we had had the opportunity to do it more often!

Unit 3 was hands down our favourite unit. It is made up of older girls 15-25 with physical or mental disabilities. One major issue is that this unit is located on the third floor where the lifts have been broken for over a year and although now fixed have not yet been certified. The girls had not been outside in a year and a half. One of our favourite days was our picnic in the garden where we brought fifteen of the girls outside and sat under the trees listening to music, painting nails, applying stick-on tattoos and eating sweets, chocolate, and crisps for hours. The happiness of finally leaving their unit was palpable and the effort of carrying the girls in wheelchairs down a flight of stairs rapidly disappeared. We spent hours upon hours colouring with the girls in their unit colouring over 300 pictures during our time there.

The ‘older boys and girls’ were another group that we loved to spend time with, they were Units 8, 9 and 11, able-bodied with slight mental disabilities. We spent hours and hours outside playing tennis, table-tennis, bubbles, chalk, Frisbee, and the cone game. One of the nicest things about this group was their ability to share and play with each other. We brought them to the cinema and had a disco for them, where there were games for them to play too. We soon realised that they may like dancing but there is nothing they love more than to play games where there are chocolate coins at stake. We were also able to do an arts and crafts session with the older girls where we made a poster of all their hand-prints not to mention the thousands of stickers then used to decorate their names that we had written out for them. We also had the opportunity to have tea and biscuits in Unit 8. As with most of the activities we pre-organised there was no water to actually make tea, although it did come back after an hour. As two Irish girls we were more than willing to drink tea allowing the boys to show us their photos albums, drawings and their prized possessions.

There are no words that can truly describe what it is like in Cherven orphanage. There are no words to describe the feeling when you interact with the kids. Such small things like bringing a child for a walk or playing music or buying ice-cream can really bring such happiness. Many hailed us a ‘brilliant’ ‘super’ and ‘amazing’ for giving up our time to volunteer in Cherven and yes it is emotionally draining, physically exhausting and at times heart wrenchingly sad, but every single second is worth it! The truth be told it is the most worthwhile, rewarding experience we have had yet!

Aoife & Rachel"

Check out the photos in the album below

My name is Irina and I’m the mother of Listratenko Olga, from Cherikov, Mogilev region.

I have never asked anyone for help before, but now I have no other choice. Our girl is already 14 years old. She has cerebral palsy, spastic diplegia. All these years we have been working hard to improve our daughter’s health, so that she could be more independent. This is our dream. Olya had a lot of the surgeries (11 in total) and I just not tell, how much pain and suffering she’s been through all these years. All Olya’s life is constant rehabilitation, operating, treatment, recovery. And we have invested all we had into it. And now we are out of funds, that’s why we need your support.

We have recently returned from a trip to China Clinic for treatment and rehabilitation. And thank God, she made a huge progress: she strengthened back, neck muscles, learned to crawl, to walk without splints with a walker, to sit with straight legs. For us, these are Olympic achievements! But most importantly, the chief doctor of the clinic has encouraged us to come back to the clinic at the end of September 2016, to consolidate the improvements, because as the girl matures and there won’t be much time left to help her. The treatment will take 2 months and the cost is $ 8,000.

We are asking all caring people to support us with anything! Every little helps and we'll be grateful for any amount you can contribute towards Olya’s better quality life!!!

The banking details are in the album under the story!

My name is Alesya Matveychik and my daughter’s name is Amelie (born she was 28.07.2014)

Diagnosis: CP,  spastic plegia more pronounced in the right limbs, with severe motor impairment. Convultion syndrome in remission stage since March 2015

Amelia has s good rehabilitation potential, but we need your support as we cannot cover the cost of the rehab due to the poor financial situation as we constantly go on rehabs and all the money goes for it.

For the rehabilitation in "Spring" center of St. Petersburg, we need 200 thousand Russian rubles (about $ 3,000) before the 4th of July.

I’m kindly asking you to help Amelia have a better quality life, have a chance. Thank you for all .....

Charity accounts opened in branch 402- Volkovysk, Sovetskaya, 20, UNP 500054844, MFO 152101689

-Bel rub-Transit account 3819382100569 for the charity account 000038 in branch 402, unlimited

- US dollars -Transit  account 3819382105607 for the charity account 000049 in branch 402, unlimited -- - Euro-Transit account 3819382105607 for the charity account 000013 in branch 402, unlimited

-Russian Ruble-Transit account 3819382105607 for the charity account  000020 in branch 402, unlimited

Irina’s story!

Diagnosis: The speech development disorder; dysarthria; mental retardation; Cerebral Palsy of average degree, Tonic-clonic form. Ira was born on 14.12.2007, at the 36 weeks of pregnancy term. The ultrasound at 35th week showed that the child had lack of oxygen. The doctors decided to induce labor, stimulated, and on the second day after stimulation our long-awaited girl was born! In the hospital everything was ok. But a month later we noticed that Ira was developing very poorly. For the next 2 months she didn’t show any singes of proper development, not even trying to hold her head up. The ultrasound of the head showed that Ira had hydrocephalic syndrome. So we started active treatment at home and in hospitals. At 6 months Ira began holding her head, 7 sounds appeared, she smiled at us, tried to pull the handles to sit down, as if everything was fixed. But at 8 months of age in the hospital Ira was given a large dose of diuretics and she got worse. Ira deteriorated to the level of a one month old child ... We went to the center "Mother and Child" in Minsk, and there Ira was literally put on her feet. Gradually she began to smile, then there appeared the first words. Since then our baby already had about 10 words: Mom, yum-yum, woof-woof (we had a dog) dad, uncle .... We were happy to hear every new word and continued to treat and strengthen her physically. At 1 year and 3 months we were on a regular course of treatment in a hospital, there Ira got ill with high fever, had some kind of infection (we do not know what it was). But having returned home, we noticed that she lost all her words, every day we were trying to remind them, but our girl was silent ... In 1 year 9 months she was diagnosed with CP. It was another terrible blow ... We knew that tears of sorrow wouldn’t not help. Again, we fought for the health of our girl. We were constantly undergoing treatments in different hospitals: injections, medications, physiotherapy, massage, exercise therapy, electrical treatments, laser, acupuncture, speech therapist, psychologist, music lessons, etc. ... But there was no response. She was on rehab courses in Minsk; St. Petersburg; Sanatorium "Belarus" in Druskininkai; 3"Dolphin" courses. The treatment gave results- Ira learned to walk, got stronger physically, began to understand more, but unfortunately, she is lagging behind in development and cannot speak.

Now Ira is 8 and a half years. This is the time when kids go to school, but health does not allow her to sit with the other children at the desk. We do not despair and look for possible ways of treatment. We did courses of treatment and rehabilitation in China, Foshan "hospital maternal and child", in 2014 for 4.5 months and in 2015 - 9 months. After the assessment in China Ira was diagnosed with atrophy of the frontal lobe brain petals that are responsible for speech and intellect. On 15 November 2015 in China's Urumqi, Ira had a surgery for implanting stem cells (in the head). Half a year passed since the surgery. Stem cells are well settled and began to function. As per advice of doctors, we are constantly loading Ira with daily sessions with a psychologist, speech therapist, motor skills, dancing ....

Those results we saw encouraged us and inspired to further action.

For Ira to live without constant assistance, perform a simple self-care skills, communicate with others, we need to take the next step. And this step  is stem cells (second implanting). We understand that without it we won’t be able to restore brain function, develop memory, attention, thought, speech.

We ask you, our dear friends, PLEASE HELP US !!! We really want to see our Ira smart and independent!!!!

The operation is scheduled for July 2016.The amount to be collected 12000$

We need to continue the treatment, but the family money is not enough for permanent treatment courses of our girl ... Please help us heal our baby! We won’t cope on our own ... Thank you to everyone who will respond and will not pass by our troubles!

Here are the banking details to help Ira:

Belarussian rubles - charity account number 000053.

Bank: OJSC "Belarusbank" branch 413/07 JSC "Belarusbank", Sovetskaya Street, 17, Lida, Belarus. Transit account 3819382104109

US Dollars - charity account number 000075.

Bank: OJSC "Belarusbank" branch 413/07 JSC "Belarusbank", Sovetskaya Street, 17, Lida, Belarus, Transit account 3819382105717

Russian Rubles - charity account number 000019.

Bank: OJSC "Belarusbank" branch 413/07 JSC "Belarusbank", Sovetskaya Street, 17, Lida, Belarus. Transit account 3819382105717

Like everyone else, we just lived, were happy and never thought we would have to seek help of strangers. Only your humanity and mercy is the only way to save our baby !!!

My daughter was born on time, healthy and strong. She only had flues, all vaccinations are done on time. Cheerful, smiling, lively, sociable and very inquisitive, our girl was going to go to kindergarten. No signs of trouble, but one day Ksenia had pain in her leg, there was a slight limp, just a week after she was complaining of unbearable pain. We went to the emergency room, where she was diagnosed with a preliminary diagnosis - children's arthritis. We went for treatment in the 4th Children's Hospital in Minsk. A full examination on abdominal ultrasound revealed a tumor of the right adrenal. Then she was sent to the State Oncology Centre Borovlyany where on the August 14, 2015 Ksenia got terrible diagnosis - stage IV neuroblastoma of the right adrenal with metastases in the para-aortic lymph nodes and bone marrow. It was like a death sentence. CANCER. Our world collapsed in an instant ... How could this happen to a perfectly healthy, cheerful and always active child?

Faced with such a grief, our life has changed dramatically, divided into "before" and "after." The meaning of our lives was to save her daughter, at any cost!

Ksenia had 6 chemotherapy blocks for tumor removal operation, MIBG-therapy, high-dose chemotherapy with auto transplant of peripheral stem cells.

The treatment gave a positive result, which confirms the conclusion of MIBG-scintigraphy, traversed 31.05.2016g.

Our treatment approved in Belarus is almost completed. But in countries such as Germany, England, Israel and the United States for patients with positive dynamics in the underlying protocol treatment, antibody therapy, they have a practice, which helps the body to completely destroy single cancer cells, preventing the risk of recurrence, which is common for the disease.

We contacted several foreign clinic for antibody therapy. Israeli hospital Schneider agreed to take us for the treatment. The total cost for treatment in the hospital is 355 700 $.

We understand that it is an expensive treatment and we can’t cover it ourselves. But we must do everything possible to save her child !!!

Therefore we ask you and ask you to provide any possible assistance and support the dreams of a little girl -  just to live !!!

Sincerely, Buynitsky family.

Location: Republic of Belarus, Minsk, st. Casimir, 27, kv.36

Phones: +375 (29) 577 22 October Tatiana, Ksenia’s mom

                    +375 (29) 315 87 80 Denis, Ksenia’s dad

Banking details:

Charity accounts opened in branch 510 Belarusbank - Minsk, Kuybysheva Str, 18; UNP 100633430; MFO 153001603:

- Belarusian Ruble - Transit account 3819382100008 for the charity account  000006 in branch 510/421, unlimited

- Russian Ruble - Transit account 3819382103249 for the charity account  000002 in branch 510/421, unlimited

- US Dollars - Transit account 3819382103249 for the charity account  000004 in branch 510/421, unlimited

- Euro - Transit account 3819382103249 for the charity account  000002 in branch 510/421, unlimited

Payment purpose: for treatment of Buynitskaya Ksenia.

MTS +375 29 5621066 Buynitsky Denis Petrovich

EasyPay 46142156

PayPal Denis.belarys@gmail.com

Dear all,

My name is Julia Nikolaevna Khristyuk. I am a mother of two children with disabilities – Polina and Maria. I will begin with the story of her eldest daughter Polina. Polina was born on 07.05.2009 prematurely - at 33 weeks with a weight of 2 kg. After a visit to the neurologist and several rehabilitation center "Tonus" she was diagnosed with: cerebral palsy, severe spastic hemiplegia in her upper limbs.

At that time it seemed that Polina was sentenced for life and for all of us who are around her and loves her. Polina has been in the rehabilitation center in Brest for children with intellectual disorders "Tonus" and in other centers of Belarus since she was 4 months old. However, for the full recovery it was not enough.

At the age of two years Polina does the first year of intensive neurophysiological rehabilitation at the International Clinic of Rehabilitation in Truskavts. Correction of the spine and a variety of procedures were carried out there: physio therapy, massage, light therapy, facial massage, reflexology, mobilizing exercises, Apitherapy, vibroekstenzor. After the first course Polina started turning around in different directions, crawling a little, muscle tone decreased, there appeared more words. Pauline was in that center four times. Today, Polina can crawl on their belly, sit on the floor, walk with support at both hands. She began to say simple words, simple sentences, but not always clear. Unfortunately, due to the strong spasticity in her upper limbs, Polina can’t not hold a spoon in her hand, and can’t eat independently, draw or write. My daughter is 7 years now. She is very smart and pretty. In March, May and December 2015 we went to Warsaw to the rehabilitation center "Olinek", where Polina was treated by method "Tomatis", as well as with a course of massage, exercise therapy. Two weeks ago we took Pauline to Tula for the tendon release operation. A month or two after the surgery it is necessary to continue active physio. Polina is scheduled for a rehabilitation course at the center of "Olinek" from August 8, 2016 and for a course of rehabilitation and social adaptation of the Institute of Conductive Education in Budapest on September 5, 2016. We have always paid for all rehabilitations and travel cost ourselves. And never complained. We know that there worse cases. In June 2014, we had twins, Alexander and Maria. Everyone was happy. However, it turned out that Masha got an intestine infection, and on the fifth day after birth Masha had her first operation and got a stoma in her belly. In intensive care in Brest Masha and I spent about one and a half months. Then in Minsk within three weeks she had complex operations on the intestine in the Republican surgery center. And then three long months in intensive care. But in spite of all the efforts, the problem is not solved. Masha was discharged from the hospital for a few months so that she could go home to meet the family and get prepared for the next operation. The first time Masha got home when she was almost 5 months. We were all very happy. Two months later, Masha had the last surgery and it was successful. We could not believe that it was over!!! But our joy was short-lived. We began to notice that Masha does not always respond to sounds. After all investigations Masha was diagnosed with hearing loss of the 4 degree on the right ear and the left ear - 2-3 degree. So far, none of the doctors can say for sure, why Masha lost her hearing. But all agree that the most likely numerous courses of antibiotics and led to the complications. We wanted to make an urgent operation on the establishment of a cochlear implant for her. Operation cost 26,500 Euro and 850 Euro Advance Diagnostics. The operation was scheduled for September 2015. And we got help !!! The necessary amount was collected in three months. Masha had surgery in September. We still have a long way to go with Masha, because the intensive care after surgery took so long. She will turn 2 in a few weeks time!!

And now back to our older daughter to Pauline. After the operation, as I wrote above, we have planned several exchange rate rehabilitation. In "Olinek" they provide the therapy in a suit "Adeli" and hand therapy. The second course is scheduled for September, we had planned to go to the Institute of conductive Pete Pedagogy in Budapest, where children try to learn to adapt to the social environment.

Unfortunately, rehabilitation and accommodation costs a lot of money. All our money spent on maintenance of the auditory processor and hearing aid youngest daughter. According to the latest rates the rehab in Olinek center is about $ 1,700 and $ 500 for accommodation. And in the course of the rehab institute Pete is 1200 Euro and 1100 Euro for accommodation. The returned flight to Budapest is about 15 million rubles. Please help raise funds for two rehabilitation center "Olinek" and the Pete Institute for our eldest little daughter Polina. Course in Warsaw is around US $ 2,200 and a course in Budapest is about 3000 Euro.

With great respect and hope for help, Julia Khristyuk

Charity accounts opened in branch No186 No.100 of the branch of OJSC "Belarusbank", Brest, Cosmonauts blwdr, 94; UNP 200246676; code 246

Belarusian rubles: No.000085

(Transit account No3819382124630 - indicated for Transfer of funds by legal entities or the transfer for other banks apart from Belarusbank)

Euro: No.000053

(Transit account No. 3819382104878 indicated for Transfer of funds by legal entities or the transfer for other banks apart from Belarusbank)

Russian ruble: No000059

(Transit account No. 3819382104878 indicated for Transfer of funds by legal entities or the transfer for other banks apart from Belarusbank)

US dollars: No. 000141

(Transit account No. 3819382104878 indicated for Transfer of funds by legal entities or the transfer for other banks apart from Belarusbank)

Payment purpose: fundraising for treatment of Khristyuk Polina.

Accounts opened in the name of Julia Khristyuk

WebMoney:

US Dollars: Z151678901585

Euro: E313824550796

Ru rub 147849812388

Home address:

224020, Brest, Masherov Avenue, d.39, kv.135

Recipient: Khristyuk Yulia Nikolaevna

Contacts:

+375 29 729 12 74 - Julia (Polina’s mom);

+375 29 728 40 24 - Maxim (Polina’s dad);

8 0162 51 88 77 (home)

Great start of the volunteer summer season 2016 was put by our friends from Burren Chernobyl Project in Gorodische children's orphanage. Now kids from units 3,4 have their own verandas. Huge thanks to all who have contributed not only the funds, but the warmth of their hearts. 

And already this evening we're welcoming a new group from Ireland and are looking forward to some new interesting and touching moments!

Dear all!

I’m Diana, and I’m asking you to support my special child Eugene

Lagutko Eugene (5 years), Baranovichi

The diagnosis: cerebral palsy, double hemiplegia, spastic tetraparesis, learning disability

Born at the 30th week of pregnancy. For two weeks he was on artificial lung ventilation and ate through the tube. Having started breathing independently, Eugene was transferred to Children's Hospital, where he subsequently became worse – started having frequent apnea episodes. The child’s deteriorated sharply.

Now Eugene is five years old. And for all five years we’ve been on constant treatment sessions, also taking expensive medications. We‘ve been on many rehab courses in "Mother and Child", centre "Turpentine", "Tonus" centre. Also were treated in the clinic Kozijavkin (Truskavets), in Lithuanian sanatorium "Belarus" and had two courses of rehabilitation in China (Funds “Planet of Good” and “Opeka”helped raise funds).

Eugene fights for his health, he is a very strong, patient and grateful child. He has a good progress: started crawling, recently has started tolerating sitting for a short while (of course with support, but we are very happy). He has even started talking (saying mom, dad, baba, ded, go, aw-aw, yes, no). But now our main problem is Eugene’s hands, they are very tight. And without the help of the hands it is not possible to learn to crawl, sit, stand and then to walk. Hands play an important role in this process. After all, in life, every minute we make something with our hands, the whole future life requires precisely coordinated movements of hands and fingers such as dressing, eating, and performing a wide variety of everyday activities. Even sitting in a wheelchair a person can be socially adapted, if he can manage moving with their own hands. At the moment, all my focus is on rehabilitation in this direction! I'm doing everything possible to organize a proper treatment! But, unfortunately, I cannot pay for the treatment he needs. I'm officially caring for a disabled child, which I’m getting paid for, but the money is not enough of course. And I also have another child and no partner to share my responsibilities. The main part of the income is spent on treatment of Eugene. Currently he needed money for surgery to help to reduce tension in the muscles and relax them, and it costs 25,000 Russian rubles. And in September, we are expected to go to the rehab center  for children with cerebral palsy (in Beijing), for the course of 2 months at the cost of $ 8500 (with the flight). For us it is a chance to teach Eugene to sit independently, and to start looking after himself. I kindly ask all caring people to participate in the fate of my child and help him have a better quality of life!

With respect and hope for help Lagutko Diana!

+375 29 802 01 80 Lagutko Diana. (Eugene’s mom)

+375 16 362 55 41 (home phone)

Banking details:

Charity accounts opened in №802 branch of OJSC "Belarusbank"

UNP 200369858; MFI 150501245

Belarusian rubles:

Transit account number 3819382109656

Charity account number 000054

US Dollars:

Transit account number 3819382112542

Charity account number 000098

Euro:

Transit account number 3819382112542

Donation account number 000016

Address:

Baranovichi, Domeyko st., 25-41, Zip Code: 225405

You can also transfer funds:

-EasyPay № 44939025

-yandex money 4100 1405 9096 694

- WebMoney.

Ruble: R120154220757

Dollars: Z470127546636

EURO: E414775473440

Our stories and updates could be found in here and here and here

Hello, we are writing to you with a huge request for help! The beginning of our history can be found here 

"Our Yanais 6 years old. Very slowly, but still she is developing thanks to daily work. But I would compare Yana’s development with the children’s mobile that parents hang over the babies’ cribs when it’s winded up, it goes round and sings, but gradually it runs out, and the music is getting slower and slower until it is stopped. Same story with Yana: good rehabilitation gives her a proper push to the development and our work with her. She learns well that it allows us to go on with our domestic classes that also give a greater feedback, but gradually, like a carousel, the "charge" comes to an end, and further work does not bring an adequate response. Therefore, she needs to go on the rehabilitation courses to give the child another push and the ability to further development and for us parents a way to communicate with specialists that suggest where we have to improve our work with the child. Thanks to all caring people we have been on rehabilitation with Jana in Russia and China. China has given us very good results: Yana started crawling on all fours, to say "yes" or "no" when asked, now our her communication is based on leading questions about what she would like or check educational methods that can be answered "yes" or "no." Yana began to ask going on a potty, mostly showing gestures, which is also very important for us. Now Yana can walk a little, holding to a stick, or with support at her pelvis. Now we would really like to have that rehab course done in the Polish intensive rehabilitation center "Olinek," where many Belarusian kids had good results in the development. Mainly due to the treatment by the method of Professor Tomatis many nonspeaking children begin to talk. Jana really wants to learn to speak, as the communication with  "yes" and "no" level is not enough for her now, she gets very upset when trying to say something to us, but we do not understand. Regular sessions with a speech therapist has not given such an opportunity, she needs a push from the inside. The condition for treatment by the method of professor Tomatis is a block of at least 4 courses with an interval between the first and second course of no more than 4-6 weeks, so we ask all concerned people to support us and to get to the treatment center for intensive rehabilitation "Olinek." So that it becomes the push to wind up her little mobile and get her started on the proper speech.

The estimated cost of the treatment of 8,500 euros.

Contacts:

(+37529) 744-28- 48 - Anastasia, Yana’s mother

(8-017) 221-52- 02 - home number

Banking details:

Charity accounts opened in №614 branch of OJSC "Belarusbank" - Minsk, Karbishev str, 13, - 2

UNP 600052608

MFO 153001520

- Belarusian rubles - transit account №3819382106084 to the charity account №000002 in branch number 614/61

- Euro - transit account №3819382118580 to the charity account №000001 in branch number 614/61

- Russian rubles - transit account №3819382118580 to the charity account №000001 in branch number 614/61

- US dollars - №3819382118580 transit account to the charity account №000001 in branch number 614/61

Payment: To be admitted to the charity account in the name of Anastasia Yaruta for treatment of Yaruta Yana

Million thanks to everyone in advance!!!"

Varvara not for a second allowed the thought of failure to cope with the disease and she always believed she’d be the winner in the unequal battle with the severe disease. This little girl immediately realized that only unconditional faith in herself would help to conquer cancer cells.

Now Varya is an ordinary child who really wants to believe in her bright future.

Varvara Stasheuskaya 9 years, Minsk

Diagnosis: right adrenal neuroblastoma combined with damage of paraorthal lymphnodes and lymphnodes of vascular pedicle of the left kidney T3N1M0, Stage 3, after the comprehensive treatment - remission. Varya was diagnosed with it in November 2010, in cancer centre in Borovliany, Minsk district.

Initial treatment was carried out in Borovliany clinic - 6 chemotherapy blocks. Since there wasn’t a possibility to perform a surgery in Belarus, we went to an Israeli hospital Schneider, where the tumor was removed by 98%.  After Israel she underwent 4 more chemotherapy, beaming and 8 months of dry chemo (Roaccutane). There was a long-awaited remission in 2012!

 The children with this diagnosis should have preventive assessments every six months for 5 years.  Thus we need to go back to Israel to fully examine and check Varya’s condition!!!

Neuroblastoma is the most poorly studied and insidious form of pediatric oncology. Very few survive. Our girl is the lucky one! But cancer is dangerous and may recur. We are all fighting for Varya’s life, this is our mutual victory! Now is very crucial moment - a 5-year remission threshold and half way to healing is passed.

His example proves: Cancer is curable.

For the assessment we need to fundraise 16 120$ before 01.07.2016

Please, help us to make sure that the disease does not go back!!!

Banking details:

Charity accounts opened in branch №614 of OJSC “ASB Belarusbank”- Minsk,

Karbysheva Str , 13/2, UNP 600052608; MFIs 153,001,520.

- Belarusian Rubles - №3819382106084 transit account for charity account №000009 in branch #614/143

- US- Dollars - №3819382118580 transit account for charity account №000013 in branch # 614/143

- Euro-№3819382118580 transit account for charity account №000011 in branch # 614/143

- Russian Rubles - №3819382118580 transit account for charity account №000010 in branch #614/143

Payment Purpose: For treatment of Varvara Stasheuskaya

Mother’s phone no: +375291291803

EasyPay  number 20704518

WebMoney account:

B362147008659 - Belarusian rubles

E910381695119 -Euro

R389147790069 -Russian rubles

 Z391150365233-US Dollars

 U167258283227 - Ukrainian hryvnia

Address:

220066 Minsk,

Tashkentskaya Str.12-43, Minsk

Recipient - Davydova Elena

                       (DAVYDAVA ALENA)

details for Schneider clinic.

 Kindly

transfer the money - to the following bank account:

 Payable to:

Schneider Children's Medical Center of Israel

 Bank: HAPOALIM

 Branch: 552-Beilnson

 Address: 1Denmark Street, Petach-Tikva, Israel

 AccountNo .: 220442

SWIFT OALILIT

 IBAN IL69-0125-5200-0000-0220-442

Patient Name:

Stasheuskaya Varvara ID number at the hospital: 8291110197-0

* Varya's help group

* Details

* Varya's story

* Documents

CONTACTS:

Mother - Davidova Elena +375291291803

 manikulia@mail.ru

Many sencere thanks to everyone!!!

        ‘Fragments from the nuclear explosion fallout at Chernobyl station which blew into the sky on 26^th April 1986 landed on us. At first we heard only of rain clouds bringing devastation, of animals contaminated by radiation. We were told – ‘don’t go there, not if you are young, or pregnant, or ever want to be pregnant; not unless you want to come back with two heads, several cancers and the likelihood of more. Don’t go there!

But we went anyway.’ (From ‘Fallout’).

         In the quiet and dark of the night – of this night – thirty years ago as we all slept quietly, the world changed. For some it was just a news story the next morning on their news channel.

         For others, it was in their lives, in their bodies, in the very air. And no one told anyone! Nobody really knew how much damage was being done. The beast released into the night air could not be recalled, could not be brought back. The genie was out of the bottle – with an evil that spread quietly and gently and deeply into the lives, into the minds and bodies of people – of children – we have come to know and love.

        Thirty years on and we are still involved, still making that journey to Belarus. We go there not because of nuclear power or contamination. We go to meet those who are now our friends, our pals – and we go because we enjoy going there, we love going there.

Let us hope that tonight is a quiet night in the world;

that whatever evil that is about to be coughed up on top of our beautiful world will somehow be contained this night and not released.

Let us hope that something beautiful may be released into the night air this night,

Something to make the world a better place,

To make us all a little better.

         Let us hope for something. Something small. Something beautiful. Something that will grow and creep like a rambling rose over the wall into our neighbours minds and hearts and souls around our beautiful world.

Let us hope this night for something beautiful.

Let each of us be that something small.

Something small and beautiful which will spread out from this night, in the quiet,

In the darkness,

Without anyone being told.

Liam O’Meara

Another heartbreaking story and another request for help. Little girl Darina really badly needs your attention and support.

" Hello!

My name is Anastasia Kolonitskaya, I am the mother of a special child Darina.

Daryna was diagnosed with cerebral palsy. She is 2 years now, but she can not hold her head, sit or talk and eats through a tube. But despite all the difficulties, we do not lose heart and fight for a better quality life for our girl every day.

In 2015, we fundraised money for a trip to The Institutes for the Achievement of Human Potential (Italy). With the help of caring people we were able to take the baby for a visit and get a competent examination.

The specialists of The Institutes for the Achievement of Human Potential Darin examined Darina, noted a positive change (Daryna’s hearing and vision improved) and developed a rehabilitation program for the next six months. We have a program of various methods including usage of respiratory masks, learning to communicate with Darina on the board of choice, hearing program, vision and tactile stimulation, three types of patterning and we also increased the number of sliding down on sloping floor. And as the child progresses the constant adjustment of the program is needed often, so  we have another appointment for July 4, 2016.

Visit price: 5250 $ and 3155 € +  travel costs.

We’ve also fundraised money for a trip to Moscow for the introduction of umbilical cord blood cells in KrioTsentre. It took us a long time to study this procedure, we considered the opinions of parents, who had already tried this method, communicated with experts and we realized that this is our chance! This is the chance for our daughter to see the outside world, the chance of a significant reduction in spasticity and hyperkinesias and to improve physical activity. We hope that this will become a new impuls to Darina’s development .

The cost of one implant is 77,000 Russian rubles. We need to make 6 implants: first 2 with an interval of 2 weeks, then every 3 months. Thanks to the funds collected, we have already made 2 implanting procedures, the next one is expected in July.

Miracle happens, where he was waiting for! We are looking forward to, hope and trust and ask for help from all of those who care!

You can follow the news on Darina’s improvement in  VKontakte social network http://vk.com/club91244744

The required amount is 6150 € + 11 200 $. We have already fundraised 1050 €, 5672 $.

Still need: 5100 €, 5528 $

Details to help Kolonitskii Darina

Charitable accounts opened at branch # 511/290 of "Belarusbank", Minsk,Okhotskaya str, 135 K.3, UNP 100349858; MFO 153001815

- Belarusian rubles - №3819382103561 transit account for the charity account №000002 in branch № 511/290, unlimited

- Russian rubles - №3819382104993 transit account for the charity account №000002 in branch № 511/290, unlimited

- US dollars - №3819382104993 transit account for the charity account №000003 in branch № 511/290, unlimited

- Euro - №3819382104993 transit account for the charity account №000002 in branch № 511/290, unlimited

Payment purpose:  treatment and rehabilitation for Kolonitskaya Darina

Web Money

E310557593832 - Euro

R259910918217 - Russian rubles

Z212272752924 - USD

B165000538148 -Belarusian rubles

For postal money orders:

Minsk, ul. Okhotsk d.95 / 15-1, 220137 , Kolonitskaya Anastasia (mother)

Yandex money

410013146132881

Easy Pay № 27908419

Here is a video story of Darina http://vk.com/videos-91244744?section=all&z=video-91244744_171783602%2Fclub91244744%2Calbum-91244744%2Fpl_-91244744

Contacts:

Kolonitskaya Anastasia V. (Darina’s Mother) +375 291 192 674

Thank you very much for all your support!!!"